Team Caleb and an update

Isn't Caleb adorable in his "Team Caleb" onesie? This is his version of the shirts the "Team Caleb" relay team will wear for the OKC Memorial Marathon later this month. Thanks to my college friend, J., for the design!

It's been 9.5 weeks since Caleb's heart surgery and 7.5 weeks since we returned home. Caleb's last cardiology appointment was in mid-March, and he doesn't go back until mid-May. Caleb's incision scar and chest tube scar are starting to get lighter. We can't even see where his pacing wires were. He's still on one medicine three times each day for his pulmonary hypertension, and he's still on 1/16 liter of oxygen. He's on oxygen at night and most of the time that we're at home. We go to appointments, therapy, church, and play dates without oxygen now, since he's fine to be off of it for a few hours at a time. I love not having to haul around those tanks. Even the tiny ones are a hassle.

It's been 3.5 weeks since Caleb removed his feeding tube. His goal has been to take 540-590mL each day, and he consistently meets/exceeds that goal now. Today, he took 615mL! Caleb sees his pediatrician on Wednesday, and we'll recalculate his calorie/volume goals based on his weight at that appointment.