Heart update

Caleb had a cardiology appointment this afternoon. The PA said that his heart looks better than it did at his last appointment, so we're continuing in the right direction. Over the last three weeks, we've weaned Caleb's oxygen from 1/2 liter day and night to 1/16 during the day and 1/8 at night. We will continue gradually weaning him down and will hopefully be off of oxygen in the next couple weeks.

As for eating, that's definitely my biggest struggle and frustration now. He has been taking about 50% of his bottles by mouth, and we've been feeding the rest through his NG tube. He had a 20 minute time limit on bottle feeding, but we were told today that we can increase his bottle time to 30 minutes. As he continues to recover from surgery and can eat longer now, I hope that we'll be able to get rid of the NG tube soon. Caleb is going to start speech therapy soon, so that may also help.

Before we left the house for Caleb's appointment, I told him that he could take one ball. I held them out, and he grabbed for both. He's definitely his father's son. And as seen in the photo below, he got his way. He's undressed and wrapped in a blanket, because we had just finished his weight check and were waiting to have his ECG done. There's no point in redressing between all the steps of his cardiology appointments.