Back to "normal"

Since Caleb was discharged from the NICU in November, it seems like most weekdays are spent shuttling Caleb to/from appointments. In Caleb's short 16.5 week life, I don't think we've had a single week where we didn't have a hospital stay, an appointment with a doctor, or a PT/OT session. Since we were in Dallas for 2.5 weeks, we had to put lots of appointments and therapy on hold. But now that we're home, we're jumping right back in to our "normal" busy schedule.

Caleb had an appointment with his pediatrician today. The cardiologist who oversaw Caleb's care while at Children's in Dallas had called her and filled her in on what all was going on. She thought Caleb's incision was healing well, and she said that his heart sounded great. She asked us about the spasms, so we showed her our videos. She agreed with the doctors we talked to in Dallas. The movements don't look like infantile spasms, but they do look like the movements often associated with Sandifer's Syndrome. I am so thankful that those scary spasms appear to be caused by reflux and not something neurological. The Prevacid seems like it's working, and it's been several days since we've seen any spasms. We will go back to her office next week for Caleb's four month vaccinations.

Tomorrow, Caleb has an appointment with his cardiologist at OU Children's and an appointment with his otologist.