Out of the hospital!

Caleb was discharged from the hospital this afternoon! He still has some pulmonary hypertension, so he's on a small amount of oxygen. And he's not taking his full bottles, so he still has the NG tube. We're hoping that we can get rid of both within a few weeks. Caleb's incision and chest tube site look like they're healing very well. While he has been cleared to do tummy time, it still seems to bother him some. We'll have to gradually reintroduce that over the next several days/weeks.

As for the spasms, we still don't know for sure what they are. We met with a gastroenterologist today, and we think that they may be related to reflux. He's now on Prevacid, so we'll see if that helps. Caleb will have another EEG on Friday to help rule out any neurological causes for the spasms.

Caleb will also have a cardiology post-op appointment on Friday. If all goes well at the cardiology and neurology appointments, we should be cleared to return to OKC on Friday evening or Saturday.

Until then, we will be spending our time at the Ronald McDonald House. My plans include snuggling with my little man, catching up on some much needed sleep, and burning off all those unhealthy hospital snacks in the fitness center.

While getting out of the hospital is great progress, Caleb still has weeks of recovery ahead. Please continue to pray as his body heals from surgery.